Thursday, June 2, 2016

Free from the machines -- almost!

It has now been over five days since Tristan has been off the oxygen machine. We still have to spot check him to make sure his oxygen is staying at a high enough level, but he no longer has any tubes covering his sweet face.

Below is one of the last pictures of him with his oxygen tube.




I know how lucky we were to only go home on oxygen. Many parents leave the NICU with their children on far more serious medical equipment and tubes. We should not be complaining about oxygen. However, we never wanted to go home on oxygen. We wanted Tristan to be healthy enough to go home free and clear of all machines. In fact, he was almost sent home days before we actually broke him out with no oxygen, so it was frustrating having to then take him home on oxygen. Even more frustrating is the inconsistency among doctors about what it takes to get him off oxygen.

As a result, once we got the free and clear to start the weaning process, we jumped on board. Here is the sweet result.

Freedom has arrived! Now, he has to keep it up for the next two months until we can get the all clear from the pulmonologist. Let's hope he stays strong!


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